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  • THE JOURNEY IS OVER (JOURNAL 90)

    3 June, 2016

    If you were to read our journal entry for this day last year, you would read the following Today's instalment… [more]

  • JOURNAL 89

    22 May, 2016

    Hi sweetheart, Sometimes I experience periods of “What if…?”. These are times when my mind seems… [more]

  • JOURNAL 88

    17 May, 2016

    Hi Darling, Coming home from the hospital with a mechanical device fitted to my chest – a P.E.G. I think it… [more]

  • JOURNAL 87

    13 May, 2016

    JOURNAL 87 The doctor said I can go home this morning. The surgery has had the desired effect and this new means of… [more]

  • JOURNAL 86

    10 May, 2016

    JOURNAL 86 MOTHER’S DAY Hello sweetheart, I haven’t spoken to our children as to… [more]

  • Journal 35

    5 September, 2015

    Hi Sweetheart,

     

    There have been a few, rare occasions when I have wondered what I would do if I ever ran out of things write about and share with you!!  But that’s a scenario that doesn’t seem to be a likely possibility – ever!!

    The kids are coming to visit and have lunch together on Father’s Day and I’m looking very forward to their company (“kids” – a strange term to use since our youngest is now beyond 40!!). Their support continues to be appropriate, genuine and consistent. Like I said a few letters back, they are such a tribute to their mother.

    Sometimes I become reflective and find myself thinking about conversations that we had during those months you were in High Care. I know that, at times, you were concerned about how I would manage without you. I guess I fuelled that concern somewhat because of the number of times I told you that I couldn’t begin to imagine what my life would be like without you in it.

    Your response was to encourage me and our children to talk about such things “because there is no way I am going until I know you will look after yourself with the help and involvement of our children”. Those may not have been your exact words but they sure conveyed that resolution!!

    Come to think about it, the nature of that disease and the amount of “hang time” that we had gave us the opportunity to discover that maybe I was more domesticated than either of us had realised!

    Mr. Parkinson continues to be a nuisance and, on occasions, he becomes downright awkward. It is embarrassing to be having a conversation in a coffee shop or in a home and to be aware that I am squirming and shuffling in a way that must be disconcerting to others. But then, at other times, you would never know that he was a constant boarder, a permanent resident in my earthly body.

    Mind you, there is no way that I could compare your MND with my Parkinson’s Disease. While there were similarities (both conditions are neurological in origin), you were certainly the carrier of a much greater burden than I.

    I will write again soon

    But Until Then

    You remain the love of my life

    Mike

     

     

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