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• THE JOURNEY IS OVER (JOURNAL 90)

  3 June, 2016

  If you were to read our journal entry for this day last year, you would read the following Today's instalment… [more]

• JOURNAL 89

  22 May, 2016

  Hi sweetheart, Sometimes I experience periods of “What if…?”. These are times when my mind seems… [more]

• JOURNAL 88

  17 May, 2016

  Hi Darling, Coming home from the hospital with a mechanical device fitted to my chest – a P.E.G. I think it… [more]

• JOURNAL 87

  13 May, 2016

  JOURNAL 87 The doctor said I can go home this morning. The surgery has had the desired effect and this new means of… [more]

• JOURNAL 86

  10 May, 2016

  JOURNAL 86 MOTHER’S DAY Hello sweetheart, I haven’t spoken to our children as to… [more]

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• JOURNAL 87

  13 May, 2016

   

  JOURNAL  87

  The doctor said I can go home this morning. The surgery has had the desired effect and this new means of treating Parkinson’s Disease looks as though it could extend my life here by a few years. Yet sometimes I am somewhat ambivalent about that prospect.

  Sweetheart, the hardest part about this past week in hospital has been not having you to talk about the procedure. For all the care, support and interest shown by many people (and I am deeply grateful for every one), there is no one that can take your place. You had your own unique way of helping me think through situations like the one that I have faced this week until your reassurance calmed my heart.

  But without your presence that sense of aloneness settles on my heart again.

  It is further exacerbated by the fact that life will now change because this new treatment involves strict disciplines morning and evening. In order to avail myself of the benefits of this treatment, I have to relinquish previous treatments and walk a path that I have never walked before.

  And what’s more, today is my birthday!! Going home is a lovely present. Going home to an empty house, that is not so lovely. My tendency to bemoan my situation once again is challenged by the recollection that you had no medication, no surgery, nothing that gave you any promise of the extension of life. No doctor would ever tell you that you could go home.

  I have displayed a beautiful photo of you during the week I have been here and it has proved to be a great talking point among other patients and staff alike. One fellow talked with me (listened to me?) for over an hour as I told him our story. Interest in the publication of the book has led to the distribution of a lot of business cards for Barnabas Network.

  But until then

  You remain the love of my life

  Mike