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  • THE JOURNEY IS OVER (JOURNAL 90)

    3 June, 2016

    If you were to read our journal entry for this day last year, you would read the following Today's instalment… [more]

  • JOURNAL 89

    22 May, 2016

    Hi sweetheart, Sometimes I experience periods of “What if…?”. These are times when my mind seems… [more]

  • JOURNAL 88

    17 May, 2016

    Hi Darling, Coming home from the hospital with a mechanical device fitted to my chest – a P.E.G. I think it… [more]

  • JOURNAL 87

    13 May, 2016

    JOURNAL 87 The doctor said I can go home this morning. The surgery has had the desired effect and this new means of… [more]

  • JOURNAL 86

    10 May, 2016

    JOURNAL 86 MOTHER’S DAY Hello sweetheart, I haven’t spoken to our children as to… [more]

  • Our Journey Through The Valley (38)

    21 August, 2013

    We continue to be the objects of prayer from many, many people. Every day we hear of others who turn to this blog to stay in touch with developments on our journey. Well, there are two developments that we believe can be linked directly to your prayers and ours.

    But before we mention those, let us say what a thrill it has been to see our daughter, Karen, organise a sponsorship walk to raise funds for the Motor Neurone Disease Association. If you haven't heard about this and would like to contribute, please click on the "CONTACT" tab on the home page, forward your email address and we will get that information to you.

    MIKE: Two weeks ago I attended a Parkinson's Disease Clinic across at Concord Hospital. It was just 12 months since my last clinic visit and the results from that clinic were produced and compared with those of this clinic. The physiotherapist took careful note and looked somewhat surprised (but pleased) when she announced that overall I was doing better this year than last year!

    In fact, during the last 12 months (and especially the last 6 months with Bev's condition) virtually all the medical people we have seen who have been made aware of my condition have found it quite remarkable that I was diagnosed over 12 years ago, given my current condition. I am so grateful for this because my ability to care for Bev is so very important to both of us.

    BEV:  Yesterday I attended a clinic at Westmead Hospital, a clinic with the unlikely name of "The Respiratory Failure Clinic". Hardly the most appealing name for such an activity! Depending where and how Motor Neurone Disease first manifests, breathing can become quite an issue early on. I was put through a battery of tests and the results indicate that my breathing capacity is not compromised in any way, in fact the doctor commented that I am very well!

    My left leg continues to be my biggest handicap because it reduces my mobility significantly but I can get around this by the use of my walker, wheelchair or motorised scooter. In fact the biggest decision I need to make with each activity is which device to use!

     

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