PrintOur Journey Through The Valley (4)
19 April, 2013
How one couple are facing life and death in the presence of Motor Neurone Disease.
One of the joys that we have shared as a couple has been the opportunity to travel, whether that was for preaching/teaching, for sabbatical renewal or simply for holidays.
Earlier this week we travelled to Tasmania for a 10 day holiday. This opportunity has been made possible because of the generosity of our three children. In fact, our daughter has changed the whole routine of her life so that she could come with us as our driver and tour coordinator. Only today have we begun to realise the extent of planning she has put into this venture.
There is another dimension of sadness that has been birthed this week. Because of the disease that we are confronting, it was necessary for Bev to be booked in with the airline as a person requiring assistance in the form of a wheelchair. We had joked together as a family about various aspects of this "first time" experience. Although Bev felt a little embarrassed at the prospect, she joined in the laughter.
I suppose we should have anticipated what followed but we didn't.
Being taken from us in a wheel chair by one of the (very considerate) airline staff, Bev again had the reality of this disease pushed in her face, so to speak. Again the sense of deep sadness welled up within her. The growing weakness in her muscles meant that she had to have help and this situation was going to get worse, not better.
Today it was the pathway up to the lighthouse that refused to let her walk to the top of hill; the hill that 12 months ago she would have managed without a second thought. And then there is that physical sensation called fasciculation where the nerves twitch and jump and are a reminder that the disease is progressing.
Again, the Scriptures came to our rescue as we were reminded that though the outward person is wasting away or deteriorating, the inner person is being renewed day by day.
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