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• THE JOURNEY IS OVER (JOURNAL 90)

  3 June, 2016

  If you were to read our journal entry for this day last year, you would read the following Today's instalment… [more]

• JOURNAL 89

  22 May, 2016

  Hi sweetheart, Sometimes I experience periods of “What if…?”. These are times when my mind seems… [more]

• JOURNAL 88

  17 May, 2016

  Hi Darling, Coming home from the hospital with a mechanical device fitted to my chest – a P.E.G. I think it… [more]

• JOURNAL 87

  13 May, 2016

  JOURNAL 87 The doctor said I can go home this morning. The surgery has had the desired effect and this new means of… [more]

• JOURNAL 86

  10 May, 2016

  JOURNAL 86 MOTHER’S DAY Hello sweetheart, I haven’t spoken to our children as to… [more]

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• Our Journey Through The Valley (43)

  21 September, 2013

  It has been quite a while since I have had the opportunity to update our journal. We have been through a period of busyness that has been satisfying in one way and frustrating in others.

  We have been the recipients of so much gracious support and affirmation that we can hardly believe it, let alone receive it.  Even today yet another of our neighbours took the time to come and talk with us and emphasised that she prays for us both every day - no exceptions.

  I hope to talk with Karen before figures are finalised for the recent WALK-A-THON but my understanding is that we have easily topped the $14,000 target and Karen seems to be beside herself with a sense of a job well done.

  So far as we are concerned, it's an 'up and down' kind of life that we share at the moment. What we reported a week or so ago about a slowing of the rate of Bev's deterioration is no longer the case as she still struggles physically around the unit where we live.  There have been a number of subtle signs that indicate the disease is on the move again.

  We went to the Neurophysiology Department at Westmead Hospital last week and Bev submitted herself to about 2-3 hours of tests involving electrodes etc. This gave the specialized staff the opporftunity to further their research into the cause and cure of this wretched disease.  I'm just so proud of how Bev is assisting their research programme.

  So the journey continues.