PrintOur Journey Through The Valley (49)
1 November, 2013
Sometimes this disease (MND) seems to have the "pause button" activated so that it feels like everything is put on hold. One can easily be lulled into thinking that this is as far as the disease will go and this is how it will be from this point. Then the very next day (or so it seems) the pause button is released and the action recommences. The disease is on the move again.
We are finding that, so far as MND is concerned, new physical experiences or sensations herald further progression of the disease.
This, in turn, requires a cold hard look at what may well be our "imminent future" and what shall the one of us who remains (after the other has gone on to glory) do so far as practical things are concerned; accommodation, transport, income management, family relationships etc.
At some point, Bev will need to go into high care. Who will make that call? And that will face me with a decision about my own accommodation....and the whole of my remaining life, for that matter.
I acknowledge that some of you reading this journal may protest that we are getting way ahead of ourselves. Yet, strangely, to honestly share our thoughts and requirements, hopes and fears, gives us a sense that the situation is not entirely out of our control.
To engage honestly in these discussions also reminds us that, there are aspects of this encounter with MND for which we are truly grateful. For example, we have just been reminded that we still have each other to talk through these issues.
A dear friend of ours (widowed for the last 9 years) has, this last week, been diagnosed with breast cancer. One of her longings is if only her husband were still here so she could talk and share her responses to this latest news. This made us realise that we still have each other to process the many issues that now face us.
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